Dear Steve,
You need to investigate how masking white noise is helping you cope with tinnitus. Do your research. Try it.
At some point in my life, I remember an audiologist telling me about masking tinnitus with white noise as a possible coping mechanism. This was back before I had the cochlear implant and was dealing with severe profound deafness. We dismissed this as a possible support idea because I just couldn’t hear the white noises.
After getting implanted, I accumulated a whole new slew of raging tinnitus noises and refused to wear the implant as I tried to figure out and reverse these tinnitus symptoms. I spent a year in despair, without the implant activated, researching and trying various healing techniques recommended by doctors. Keeping logs of diet changes, exercise changes and how weather fluctuations affect my tinnitus symptoms. All in attempts to try to “heal” the tinnitus.
Hey, that was a rough run, but you had to find out. You needed to do the work and see for yourself.
None of my actions seemed to make any sense or improve my symptoms. Nothing helped until I finally fully accepted the situation. Acceptance allowed me to let go. To surrender. Total acceptance allowed me to open my mind to new ideas and thoughts about the tinnitus. Steve, this is it. This is how it’s going to be. Deal with it. You are tougher than you think. You can figure something out. Acceptance allowed me to try the implant again.
Exploring how the stimulus from the implant was helping distract my brain from tinnitus noises by giving it another stimulus to focus on, I remembered what the audiologist and I briefly discussed about masking tinnitus. She said if we give the brain something to focus on, the tinnitus could start to fade into the background. One night I was doing some work on my laptop in the living room while my wife was in the kitchen doing dishes and cleaning up. Dishes and glasses clanging and silverware clanking have forever been my nemesis. In addition to the deafness and tinnitus, I have hyperacusis, which is a sensitivity to certain sounds that my brain perceives as excruciatingly LOUD. These sounds would trigger flight responses and elevate my blood pressure and anxiety, which in turn would elevate the tinnitus noise, which in turn would elevate my heart rate … all cycling into exhaustion, dizziness and becoming really f-ing irritated.
I went to youtube and searched on white noise and found a whole load of 10-hour loops of “noises” there! All different colors and whatnot. Wow! I didn’t understand the color coding, so I did a google search to find out what the different colors mean. Each color has a different frequency mix of “noise.”
That’s cool, weird, and still confusing. Which one, man? Doesn’t really matter, Steve, you’re just starting to hear these sounds, and they all sound absolutely the same. Pick one. Another google search and I discovered that “pink noise” has been found to give relief as a masking function, to people suffering with hyperacusis! Well, there you go. Let ’er rip!
I cranked up the volume bar and clicked play. Some advertisement from VRBO comes on yelling about vacation rentals I guess, as my wife comes quickly into the living room with a dishrag. It just sounds like crackling robotic, machine noise to me.
“Very loud, ouch!” she signs to me, pointing at the laptop.
“Dishes, very loud, Ouch-OUCH,” I sign back, pointing at the kitchen.
After all these years, she knows, the kids know, even the neighbors know that I have sensitivity to normal environmental sounds, because I would cringe, or go to my knees holding my ears, or run out of the yard party with my pinkies in my ears.
“Ok, I’ll lower it. Can you keep doing the kitchen stuff? I am trying some new training with the implant,” I sign and speak.
Surprised, she gives me a thumbs-up and goes back.
I skip through the advertisements and the pink noise comes on. It kind of reminds me of the old TV static, and I watch the swirling pink cotton candy screen they use as a video accompaniment for the noise, trying to find a loop in the digital swirl. It’s like a bunch of sea creatures swirling and swimming around the screen…. It’s like a close-up of blood cells or bacteria cells moving around at high speed, or just some trippy cosmic space light thing. It’s got to be on a loop, man, this cannot be a linear program. I’m wondering when the loop is going to reset itself. Like, how many seconds or minutes before it goes to reverse and back and forth. I’m intensely studying a pattern in the corner of the screen when I suddenly wonder if she is still doing the dishes. She is.
Holy crap! I hit the mute button, and in a 2-second time span, the noise from clanging dishes fades back in. There must be some compression on the implant because I know a fade-in/fade-out from all my experience with music and recording, and that was a fade-in for sure. I hit the unmute button and the pink noise comes on roaring but then balances out while the dishes’ noises fade to the background. Whoa.
I started experimenting with pink noise in every situation that I was uncomfortable in—from jogging on gravel trails to sitting in restaurants. Just jogging on gravel would trigger my heart rate. It became such a new and weird sound with the implant that it caused me to seek out jogging on grass or running circles around a field. I downloaded the pink noise loop onto my iPhone and would duct-tape it to my shoulder under the implanted side of my head before running on the gravel trail. It worked! It’s like a blanket—mellowing out the perceived piercing sounds from the gravel, blanketing the shrieking crunches. In restaurants, I started to just slide the phone under my shirt collar on my implanted side. It worked! It’s like a cloud of cotton candy pink haze surrounding me, dampening out the crap, distracting my brain from the tinnitus and environmental noise, and I could actually focus on talking to my wife. A fluffy haze. A weighted blanket over the crap. A mask. Masking the tinnitus. This is what the doctor meant.
Having the implant on, and running pink noise, is giving my brain something consistent to focus on rather than the tinnitus shrieking, buzzing and ringing, or the perceived shocks of random sounds that pop up through the day.
The pink noise loop is getting a lot of play on my iPhone. It has become my go-to strategy for coping with tinnitus and hyperacusis. I use it often, in private and in public, and in my classes too. The students were freaked out at first but now they like it and even ask me to put it on sometimes. I guess it calms them and helps them to focus as well.
Steve and his nice big fluffy pink cloud blanket. It’s working.
[JB1]Was repeating anxiety intentional?
[sd2]yeah, i thought so.
Steve DiCesare is the author of Dear Steve, You’re Going Deaf available at youregoingdeaf.com. Art by Ian J Miller. If you’re interested in being a guest blogger on my Hearing Loss blog, please contact me.
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